The Sickle Cell Disease Program is a nationally recognized center of excellence that provides comprehensive sickle cell disease care to manage the disease and prevent its complications. Our program includes:
- Expert clinical care
- Family support services
- A cooperative blood donor program
- Community outreach
- Education
- A wellness initiative
- Research into the nature, causes and treatments of hemoglobin disorders
Our staff consists of full-time pediatric hematologists, nurse specialists/nurse practitioners, a genetic counselor and a social worker dedicated to the program. The program is led by Robert I. Liem, MD, Director of the Comprehensive Sickle Cell Program and Professor of Pediatrics at Northwestern University Feinberg School of Medicine. Dr. Liem is board-certified in pediatric hematology/oncology and pediatrics.
Why Choose Lurie Children's?
We work to improve the health and well-being of patients affected by sickle cell disease within a kid-friendly, family-focused environment. Our specialists are trained to treat children with sickle cell disease, meet their specific needs and counsel all family members on preventive treatment measures and serious complications.
The program offers transfusion services through a therapeutic day hospital, as well as routine screening by transcranial Doppler ultrasound to assess the risk of stroke. Our clinic, which includes specialized programs for newborns and children taking the drug hydroxyurea, is open four days a week.
What to Expect
Sickle cell disease has short- and long-term effects on virtually every organ system, including the brain, heart, lungs, spleen and eyes. Our program stresses preventative treatment to minimize serious complications when possible.
Early diagnosis and prevention of complications is extremely important for children with sickle cell disease. Treatment may include penicillin “prophylaxis,” pain medications, increased fluid intake, blood transfusions, hydroxyurea or stem cell transplant. Treatment varies with each child, and we collaborate with parents to develop the best plan for their children.
Support services are integral to our approach and we sponsor numerous programs, such as a parent to parent network, community education and outreach, annual social activities for patients and their families, scholastic achievement programs and a formal program for transitioning patients to adult care.
Make an Appointment
We offer easy online scheduling for your child's hematology and oncology needs.
Our Location
Ann & Robert H. Lurie Children's Hospital of Chicago
225 E. Chicago Ave.Chicago, Illinois 60611
312.227.4000
Resources & Support
Learn more about sickle cell disease through these informative resources:
Sickle Cell Disease Program News & Stories
From Pain to Possibility: Angel’s Journey to Curing Sickle Cell Disease
Angel tried out for her high school track team on a spring school day and awoke the next morning with intense pain throughout her body. She had never experienced this pain before, but she’d seen her family members endure painful episodes while dealing with sickle cell disease.
First Person with Dr. Robert Liem: APIDA Heritage Month Reflections
Dr. Robert Liem shares about meaningful professional moments and cherished personal ones in honor of APIDA Heritage Month.
With a bone marrow donation from her little sister, Cali is cured of sickle cell disease
When Kendra and Lord welcomed their first child, their elation quickly gave way to concern when it was revealed their daughter had sickle cell disease.
Eight-Year-Old Mya Wins Sickle Cell T-Shirt Design Contest
Throughout her lifelong journey with sickle cell disease, creating her own artwork has helped eight-year-old Mya cope.
Is Exercise Safe for Kids with Sickle Cell Disease?
Philanthropy
Your support is vital in helping us continue to make a difference in the lives of patients and families. Lurie Children's relies on philanthropic funding to enhance its programs, services and research for children. To learn more, please e-mail the Ann & Robert H. Lurie Children’s Hospital of Chicago Foundation at foundation@luriechildrens.org or call 312.227.7500.
Sickle Cell Awareness Month
Sickle Cell Awareness Month in September helps bring greater understanding of sickle cell disease and inspires funding into better treatments and potential cures.